This morning I went through my first round of strength testing since my round of treatment in November and December in South Korea. My results, both the strength of my arms and legs and my breath capacity, were compared against the numbers from the same tests taken to establish a pre-stem cell therapy baseline in October and early November.
There was no difference in the numbers from the baseline to today. This suggests that there has been no progression in my disease based on these critical metrics over the last four months. That is a remarkable outcome – one that has been exceptionally rare in the world of ALS science and care.
I am so grateful to have been able to travel to Seoul and receive the treatment which early returns suggest is doing its job. Monitoring my strength and breathing over the next few months will be important to determine how long the effects of the treatment will last, and when or if another round is advisable.
Until then, I'm enjoying this result!